How we compile our information and sources used

We produce independent, expert and person centered information for people affected by hair loss due to cancer treatments. We do our best to write our information in plain English with a friendly and compassionate tone. Our information is not meant to replace that of other guidance available but to enhance it and offer insights from people who have been affected by cancer alongside expert views. We are not a medical organisation and do not offer medical advice. However, due to the subject matter of hair loss due to cancer treatments, we have to refer to various medical terms.

We encourage people to seek other information and opinions. We try to make our information accessible to the widest range of people as we can. Please get in touch if you have information to share for our panel to consider.

Our information is reviewed every 1-2 years. However we make on-going updates when appropriate.

We deliver information in a number of ways:

• Our website
• Booklets
• Videos
• Articles
• Leaflets
• Media
• Social media
• Face to face services
• Telephone services
• Educational talks and training

Sources used

We rely on a number of sources to gather evidence for our information. As well as the experiences of the people who use our service, medical professionals and our in-house experts. We also use medical, trichology, dermatology and relevant textbooks, journals and publications. If you’d like further information on the sources we use, please feel free to contact us.

A sample of the types of sources used can be found below. If you would like further information about the sources we use please get in touch.

With special thanks to the people who have been affected by hair loss and cancer, who have kindly shared their stories, feedback and experiences with us so that we can share them with others.

Oncologists, nurse and healthcare professionals - Cancer Hair Care regularly consult with cancer professionals to discuss best practice when offering guidance. We are the only hair loss charity to run clinics within NHS hospitals.

Clinical Dermatology: A Color Guide to Diagnosis and Therapy, 6e 6 by Thomas P. Habif MD (ISBN: 9780323261838)

NHS website. www.nhs.uk (accessed March 2018)

Disorders of the hair and scalp R. Sinclair and V. Jolliffe. Second edition (ISBN: 9781908541376)

The Hair Bible by Philip Kingsley 2012 (IBSN: 9781854109064)

Cancer Hair Care website: www.cancerhaircare.com (accessed March 2018)

Macmillan website: www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/hair-loss (accessed 2018)

Neals Yard Natural Remedies 2011 IBSN 978-1-905830-008

Macmillan Coping with hair loss booklet , 9th edition August 2017

Gupta, Jasmin: Specialist hairdresser with Extensive Clinical experience and working practice with women, men and children presenting with physical and emotional issues related to hair loss.

Cancer Hair Care: Booklet - Understanding the hair loss & regrowth cycle due to chemotherapy treatment first published 2015

Cancer Research UK website: www.cancerresearchuk.org

Paxman Scalp Cooling www.paxmanscalpcooling.com (accessed March 2018)

Digni Cap www.dignicap.com accessed March 2018

Breast Cancer Care UK www.breastcancercare.org.uk accessed March 2018

Cancer Hair Care - Independent scalp cooling advisory board. Group made up of people who have experienced scalp cooling alongside scalp cooling hair care experts.

Panel - Cancer Hair Care regularly consults and co-creates information and services  with a panel of people who have experienced scalp cooling and hair loss during a broad range of different cancer treatments.

Images and information graphics

We use a number of images and information graphics. Some of our photo's are of people who have themselves experienced hair loss and cancer, experts and supporters and individual keen to help. Some people request us to not use them or to change their name for privacy reasons. Additionally we also use some photos are of models or stock photography.

Suppliers

When we offer ideas of suppliers e.g. specialist headwear, we try our best to offer a minimum (when applicable) of three suppliers (more if we can).

Videos

We work with a number of organisations to produce videos that we hope will be helpful to you. Additionally we also signpost to other videos that we think may be beneficial. We do not necessarily share the options of the individuals in the videos. Our role is to share with you a range of ideas and opinions that may be helpful and offer insight. If you would like to recommend a video please get in touch – our panel will be happy to hear from you.